Age of Personalized Genomics Conference - Sept 16-19, 2009

Agenda

Wednesday, September 16, 2009

6:30 pm

Registration and Opening Reception

7:30 pm

Picard Lecture Series: The Future of Personal Genomics

Introduction: Timothy Caulfield and Tracey Bailey, University of Alberta

Session Chair: Eric Meslin, Indiana University

Speakers:

Wylie Burke, University of Washington

George Church, Harvard University

Pilar Ossorio, University of Wisconsin

Thursday, September 17, 2009

7:00 am

Breakfast & Registration

8:15 am

Opening Remarks

Theme One: The Science

8:30 am - 10:00 am

Session Chair: Laurence Kedes, X Prize Foundation

Speakers:

Stephen Scherer, University of Toronto

David Flockhart, Indiana University

Michael Hayden, University of British Columbia

10:00 am

Nutrition Break and poster viewing

Theme Two: Research Ethics Challenges

10:30 am - 12:00 pm

Session Chair: Eric Juengst, Case Western Reserve University

Speakers:

Mildred Cho, Stanford University

Jeantine Lunshof, Maastricht University

Donald Chalmers, University of Tasmania

12:00 pm - 1:00 pm

Lunch & Poster Viewing

Theme Three: Impact on Health Care and Health Systems

1:30 pm - 2:30 pm

Session Chair: Mark Rothstein, University of Louisville

Speakers:

James Evans, University of North Carolina

Gregory Feero, Maine-Dartmouth Family Medicine Residency Program

Abdallah Daar, University of Toronto

2:30 pm- 3:00 pm

Nutrition Break & Poster Viewing

Concurrent Sessions: Abstract Submissions

3:00 pm - 4:30 pm

Session A

Chair:
Peter Phillips
University of Saskatchewan

Speakers:
Sandra Soo-Jin Lee^{Race, Risk and Odds Ratios: the Relevance of Personal Genomics for the Non-European}
Jonathan Kahn
^{The Persistence of Race in Biotech Patenting and Drug Development}
Naomi Hawkins
^{Human gene patents and genetic testing in the UK: results of an empirical study}
Robin Pierce
^{Promoting and Subverting Control: The Double-edged Effect of Personalized Genomics}

Session B

Chair:
Michele Veeman
University of Alberta

Speakers:
Pascal Borry
^{Health-related direct-to-consumer genetic testing. A review of companies’ policies with regard to genetic testing in minors}
Brenda Wilson
^{Using genomic profiling to individualize population cancer screening: an exploratory study of public and professional views}
Caroline Wright
^{Evaluation of Genetic Tests and Complex Biomarkers}
Jennifer Fishman
^{Motivations and Moral Imperatives of Early Adopters of Personal Genome Services}

Session C

Chair:
Patricia Kosseim
Genome Canada

Speakers:
Bernice Elger
^{The ethics and regulation of biobanks: global consensus and controversies (Results from a worldwide expert consultation)}
Dr. Yong Zhang
^{Sequencing, Sequencing, and Sequencing}
Scott Roberts
^{Genetic Susceptibility Testing for Common Diseases: Findings from the REVEAL (Risk Evaluation & Education for Alzheimer’s Disease) Study}
Holly Tabor
^{Ethical and Social Challenges in a Whole Genome Sequencing Study of Two Families with a Rare Disease}

Session D

Chair:
Michael Burgess
University of British Columbia

Speakers:
Denise Avard
^{Public Involvement in Genomics and Health: A Comparative Review of Guidelines and Policy Statements}
Kieran O'Doherty
^{Linking Public Engagement and Policy for Human Tissue Biobanking}
Sarah Ali Kahn
^{Whole genome scanning: resolving clinical diagnosis and management amidst complex data}
Julie Harris
^{Understanding factors affecting adoption of personalized medicine technologies: Case study of genome expression profiling tests for breast cancer.}

6:30 pm

Networking Reception & Poster Viewing

Friday, September 18, 2009

7:00 am

Breakfast

Session Four: Media & Popular Representations

8:30 am - 10:00am

Session Chair: Gail Geller, Johns Hopkins University

Speakers:

Celeste Condit, University of Georgia

Richard Gallagher, The Scientist

Helen Wallace, GeneWatch UK

10:00 am - 10:30 am

Nutrition Break & Poster Viewing

Session Five: Commercialization and DTC

10:30 am - 12:00 pm

Session Chair: Sharon Terry, Genetic Alliance

Speakers:

Joanna Mountain, 23andME

Amy McGuire, Baylor College of Medicine

Paul Martin, University of Nottingham

12:00 pm- 1:00 pm

Lunch & Poster Viewing

Session Six: Regulation & Governance Issues

1:00 pm - 2:30 pm

Session Chair: Laura Rodriguez, National Institutes of Health

Speakers:

Jane Kaye, University of Oxford

Stuart Hogarth, King's College, London

Kazuto Kato, Kyoto University

2:30 pm - 3:00 pm

Conference Closing Remarks:

Bartha Knoppers, McGill University

Research/Networking Workshops

3:15 pm - 5:00 pm

Workshop: CIHR Institute of Genetics: Genetic Nondiscrimination Legislation in Canada.

Moderator: Timothy Caulfield

Panelists:

Yvonne Bombard, University of Toronto
Donald Lamont, Huntington Society
Trudo Lemmens, University of Toronto
Joanna Mountain, 23andMe
Daryl Pullmann, Memorial University
Martin Sommerville, University of Alberta

Downloadable Agendas

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